Showing posts with label sick. Show all posts
Showing posts with label sick. Show all posts

August 15, 2009

Waiting

So I now have six long weeks to think about my surgery. To fret, freak out and be a complete and utter you-know-what to my husband. Because he is the one that gets the brunt of my fear and anger. I try to apologize at every chance for my behavior. There's no excuse. My friends tell me it's understandable. But really, I'm not a nice person for this time. And he doesn't deserve that. Not at all.

It turns out that postponing surgery does not make it better. In fact, it gives your daymares (or at least that's what I'm calling them). For the three weeks leading up to my surgery I go from worry to obsession to panic. I am consumed with fear about what will happen. After two long weeks of awful behavior on my part, I finally explain to my husband what has been happening. I start with another apology and then say, "Every day for the past two weeks, a thousand times a day, I die on the operating table during my surgery. And the one or two times a day that I don't die, I have cancer."

I explain that these are my daydreams, nightmares throughout the day - daymares. I tell him that it doesn't end when I go to sleep - all night long, I play these over and over in my head. I am more exhausted than before. He does what he has done a hundred times since we were at the doctor's office. He pulls me close, gives me a hug, and tells me that everything will be okay. And I want to believe him. But part of me feels that something isn't right. I ask for him to keep telling me this everyday. Because until it's over and we have the test results, I won't believe it. But I will try...

It's been a while...

And I've missed you...

Things have been all sorts of crazy over here. So let's start at the beginning. I will be posting several times over the next couple days so I don't end up with another ridiculously long post.

Let's start with the rest of the doctor issues...

I received a call at work with the results of the biopsy the Tuesday after my appointment. The nurse says "The results of your biopsy are back. You have a thyroid tumor. Cancer can't be determined." I was told I would need to make a follow up appointment to talk to the doctor to figure out our next steps. I scheduled the next available appointment - Thursday. I have tried to stay positive up to this point. I have believed that everything was going to be okay. And instead, I am dumbfounded by this news. This was not supposed to happen. I was not prepared for this...

I call my husband. Repeat those three sentences and burst into tears. He tells me we will get this figured out and everything will be okay. We have nothing to worry about until we talk to the doctor and he tells us to worry. I say okay and tell him we will talk tonight. All I want to do is be with him and that's not an option for the next few hours.

I text a friend in another part of the building and ask her to meet me in the lobby. We walk around the office parking lot and I cry. I make vain comments about my neck being the only thing that didn't get fat on me while I was pregnant. I talk about the possibility of surgery and cancer and what will happen with my husband and Sweet Pea. My friend calms me down and we walk back into work. Thankfully, I am about 30 minutes from my scheduled time to leave so I wrap up my work and fly out the door at 4.

At the doctor's office on Thursday, he recommends surgery. And he recommends it sooner rather than later due to the size of the tumors. I have a list of questions and the doctor answers them one by one making sure we understand everything. I have my husband with me because I have been known to leave the doctor's office with no recollection of what was said. And because he wouldn't have been anywhere else but by my side. He's good like that.

I'm sure I'm smiling like an idiot throughout this appointment. In fact, the doctor mentions that I seem awfully calm about this recommendation of surgery. My husband said we thought this might be what you recommended. I nod along like an absent minded fool while in my head I'm screaming - THIS IS MY WORST CASE SCENARIO! YOU ARE TALKING ABOUT SLICING OPEN MY THROAT! I'M NOT OKAY WITH THIS! I'M NOT OKAY!!!

The appointment wraps up and I schedule the surgery for Thursday, August 13th - approximately 6 weeks later, because I'm not ready for this. I'm not okay. I'm scared.

July 13, 2009

Update...finally

So I was going to write about Sweet Pea's first trip to the zoo but I realized all those pictures are at home and not on this computer. So instead, maybe it's time to fill you in on what has been weighing me down...(FYI - I started this post exactly one week ago, but lost track of time and ended up running late to my grad class. Oops.)


Almost two months ago, I went to the doctor. I had been absolutely exhausted for a couple weeks. I wasn't tired from the baby. It was this all consuming, over whelming, frightening tiredness. It would hit me every morning as I sat in traffic. I would finally gain enough energy to carry on a conversation a few hours later but I struggled to stay focused and conscious for the rest of the work day. The drive home would be amazingly smooth and awake. I was usually pretty good until around 8pm. At that point my body would give up and I would fight with all my might to stay awake if there was something that needed to get done. More often than not, my husband would find me passed out, fully clothed on the couch, or on top of the covers or anywhere else in the house if I stayed still for a couple minutes.


This was particularly alarming to me when I was commuting into work. I worried that at any moment I would pass out and smash into the cars in front of me or the construction barriers that make up 95% of my commute or hit the guardrail or land in a ditch. I told my husband that it was so bad, I was tempted to pull over to the shoulder in rush hour traffic just to close my eyes. I tried blasting the radio, opening the windows, turning on freezing cold air and even snapping a rubber band on my wrist. Nothing worked. I found myself violently shaking my head back and forth to jar my eyes open. The only thing that worked, was to talk on the phone. I know, I know. There are all sorts of reasons why this is not a good idea. But here's the thing, it kept me awake, and as my two friends who now get daily calls can tell you, focused. As I complained about this person and that person and wondered aloud why every road I travel on must be under construction, I found that I could keep my eyes open and arrive safely at work.


So, on May 20th I went to the doctor. It was an awful visit. My doctor was an hour and 45 minutes late for our appointment. There were other things that I do not care to write about, but I decided in that time waiting that I would never see this doctor again. (More on this later - in a different post.) But, this doctor thought that maybe it was my thyroid that was causing the tiredness. Not the baby - as everyone else had diagnosed me. And here's the thing people, if I tell you "It's not the baby. Sweet Pea sleeps through the night. I sleep through the night. I get a ton of sleep. I'm still exhausted." Then guess what? It's not the baby. It's not when I go to bed. It's not how much sleep I get. I know something is wrong. And thankfully, this doctor caught it. In the exam she mentioned that my thyroid felt a little generous (her words...). She ordered blood work and an ultrasound.


The blood work was completed immediately but I would have to wait on those results for a couple days. The ultrasound got scheduled for the following week. I have the ultrasound with my husband in the room. It’s not that it’s that big of a test, but honestly, I wasn’t sure if the person was going to say something like “Oh my God, that’s a big tumor or whatever.” And having him there made me feel better. I call the doctor's office and ask for a copy of my blood work results and the results of the ultrasound. I don't know what the results say at this point but I know that I will be seeing a new doctor and I want to have at least this information.


I pick up the test results in a sealed envelope (after the woman at the reception desk passed by the envelope at least twice...). I walk out into the sunshine and slowly tear open the envelope. The blood results are on top. As the nurse said, nothing is abnormal with the exception of high thyroid antibodies. Basically my body is attacking my thyroid and it's fighting back. From the research I have done online...(I know, I know - self diagnosis is not a good idea but I can' thelp but looking up some things) I know that this is probably a pre-cursor for hypothyroidism.


The ultrasound test results are next. I scan them for "bad" words. I find a sentence that starts with "At least..." It has been determined that I have "at least" 2 nodules. I feel like I got punched in the stomach. I get to my car and call my husband. "What does this mean?" "What's wrong?" "Why did they find something?" "What does this sentence mean?" He calms me down and says we will take things one step at a time. I take a deep breath, start my car and head to work.


It is the recommendation of my doctor to see another doctor in the practice, who is a surgeon but also has endocrinology background. I am told this doesn't guarantee I will need surgery. This does not make me feel better. The doctor also wants me to have a thyroid scan and uptake. This test involves radioactive materials and if I decide to have the test done, I will need to go to all formula for Sweet Pea. I schedule the two day test for the first week in June. In the end, after discussion with the nurse and my husband, we decide to hold off on this test.


Two weeks after my original doctor's appointment, I am in a new doctor's office. She tells me that if these were her test results or those of her sister (high thyroid antibodies and at least 2 nodules on the large side on the left side of my thyroid), she would recommend seeing an ENT. She makes me feel comfortable, she listens, she asks questions, she repeats things. And she doesn't mind that my husband is with me. Because I have learned that I cannot be trusted to remember what the doctor tells me. (More on this later as well - again, in another post.)


I meet the ENT doctor at the end of the next week. My husband meets Sweet Pea and I there as I was working from home that day. I had been travelling for work and didn't get home from the airport until 1am. There was no way I was going to turn around 5.5 hours later to put in a hour commute while I was more exhausted than usual. We discuss the test results and what steps we should take. He recommends a FNA (fine needle aspiration - see nice technical term for biopsy, which is a nice term for stabbing you with a needle multiple times).


The biopsy sucks. The room is too small for my husband to hold my hand and with Sweet Pea there it's not really a possibility anyway. Sweet Pea fusses a little as I'm getting situated on the exam table. She gets a bottle and I can hear her happily eating away. I have my necklace with our names on it wrapped around my wrist with the pendant in my hand. I squeeze it tightly as the doctor takes three samples from my neck.


I wince with pain, hold back the tears and five very long minutes later it is over and the doctor leaves the room. The doctor says he knows it was painful and that I did great. It hurts to swallow and I am convinced that he has punctured something in my throat. I am told that the test results will be back to me by the following Wednesday at the latest. We are left with the nurse, who puts her hand on my shoulder and apologizes for the pain. She says it's okay to cry. Which I do. I'm exhausted. I slowly get up and my husband pulls me into his arms. I hug him and Sweet Pea together and try to gather myself. We take a deep breath, get Sweet Pea in her car seat, gather my things and head out.


Coming soon...the test results

April 30, 2009

Great Start

Two weeks into blogging and I'm already slacking.  Such a procrastinator you say.  But I have my reasons.  Last Wednesday, Sweet Pea got sick.  And then Friday, I got sick.  And then Saturday, my husband (who never gets sick) got sick.  

It started with a stuffed up nose and not a lot of sleeping on my part.  Sweet Pea was sleeping, but she was so stuffed up that it was causing her to cough every 15-20 minutes and shift in her sleep.  She was finally forced to breathe through her mouth.  While it didn't seem to affect her sleep, every time I heard her I woke up to make sure she was still breathing.  It was the same thing for my husband.  We woke up Thursday morning totally exhausted.  By Friday night what I thought were allergies due to the crazy up and down Chicago temperatures, was pretty much confirmed to be a cold.  I was absolutely miserable.  Having not been sick almost my entire pregnancy and not at all since I had Sweet Pea, I wasn't the happiest person.  Grateful it was the weekend, I just prayed to get some sleep and was happy to sleep in the next morning. (Read - I woke up at 6:30 instead of 5 am.)  The rest of the weekend continued with lots of stuffy noses, sore bodies and as much sleep as we could get.

I thought I was better until yesterday morning when I was convinced I had been run over by a bus.  I felt awful.  A quick call to the doctor in the morning and a visit shortly after confirmed that no I did not have the flu (or the swine flu) and indeed just a virus and I should feel better soon.  The doctor gave me a prescription for some antibiotics and said I can wait out the virus or take these and possibly feel better a little sooner.  I chose the antibiotics.  Here's hoping I'm back to 100% soon.  In the meantime, Sweet Pea sounds much better.  I'm thinking she should be good as new tomorrow.  Just in time for us to head to Michigan for a family baby shower.

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